Nothing like a strong dose of skepticism to start the morning. Sorry folks, I'm very concerned about this. First, note the word "relieve" in the release. That, to me, means this would be like a cough medicine. If you give the medicine, your child's symptoms are relieved, but not cured. When the medicine wears off, they return. And, then, like other meds, there's other impacts. With my kids, the preservatives and dyes are problems. They cause behavior issues that are almost worse than the initial illness. Again, sorry, but I think this is the mainstream medical community seeking that "pop a pill" answer to autism rather than the complex treatments that actually make life-changing differences for many of us. Make up your own mind. You'll find the original release here.
INVESTIGATIONAL MEDICATION TO BE STUDIED IN CHILDREN WITH AUTISM
PITTSBURGH, Nov. 26 – Children with autism spectrum disorder between the ages of five and 17 years are needed to participate in a research study looking at how a medicine called fluoxetine works to relieve the repetitive behavior and other symptoms associated with autistic spectrum disorder (ASD). The study will take place at the John Merck Child Outpatient Clinic and Western Psychiatric Institute and Clinic of the University of Pittsburgh Medical Center (UPMC).
Researchers are looking for both children with autism and those who have symptoms of ASD. For the purpose of this study, fluoxetine is investigational. An investigational drug is one which has not been approved for this use by the U.S. Food and Drug Administration (FDA).
Autism is a developmental disorder that is characterized by impairments in communication and social interaction skills, as well as the presence of stereotyped patterns of behavior. Many children with autism also experience challenging behaviors, such as overactivity, anxiety, irritability and agitation. The targeted behaviors for this study include:
· constant rocking, spinning, twirling or pacing
· repeating words or phrases over and over
· repeating activities such as going in and out of doorways, picking up and putting down objects
· insisting objects be in a precise order; or that they do things in a particular way or particular order, et cetera
· insisting parents or caregivers perform activities in the same manner over and over again
· asking the same questions or making the same requests over and over
· issues with any other type of repetitive behavior that interferes with daily function
The study will require nine visits, and additional visits may be scheduled if clinically indicated. Participants will be compensated for their time.
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11.26.2007
11.23.2007
Autism research at Harvard
If you missed Kent Heckenlively's piece "The Harvard Gang" at the Age of Autism site, it's worth reading. Here's a snippet, but you can read the rest by following the link. It's interesting stuff about what Harvard researchers are finding in the autism world.
THE HARVARD GANG
By Kent Heckenlively, Esq.
You can always tell a Harvard guy,” my dad would say, beginning one of the innumerable jokes he told during my youth.
“How?” my brother and I would respond, knowing we were being set up.
“Because he has to tell you he went to Harvard within the first five minutes you meet him,” came the answer.
If earlier generations of the crimson and black were known for trumpeting their credentials, I have to admit that the current crop now impresses me with their research into solving some of the mysteries of autism.
Dr. Martha Herbert of Harvard Medical School first caught my attention back in 2005 with her article, “Large Brains in Autism: The Challenge of Pervasive Abnormality.” Dr. Herbert was investigating the most replicated finding in autism neuroanatomy, namely that autistics seem to have unusually large brains. In her review of autism research, she noted that the picture which was emerging suggested inflammation as a reason for the large brains observed in autistic children.
Dr Herbert wrote, “Although there is a great deal of heterogeneity to the medical complaints that frequently accompany autism, there are common threads that may indicate common or related molecular and cellular mechanisms between body and brain. For instance, the pathophysiologies of inflammation and oxidative stress, and excitotoxicity are greatly linked, and it appears these types of mechanisms are implicated in the brain as well as some of the sensory and sleep regulation, epilepsy, immune, and gastro-intestinal complaints commonly seen in autism.”
To translate the medical-speak, inflammation is something we know from infections or injuries, oxidative stress is another expression for the signs of stress on the body from chemicals, and excitotoxicity is another word for how nerve cells responds to toxins.
Read the rest at Age of Autism.
THE HARVARD GANG
By Kent Heckenlively, Esq.
You can always tell a Harvard guy,” my dad would say, beginning one of the innumerable jokes he told during my youth.
“How?” my brother and I would respond, knowing we were being set up.
“Because he has to tell you he went to Harvard within the first five minutes you meet him,” came the answer.
If earlier generations of the crimson and black were known for trumpeting their credentials, I have to admit that the current crop now impresses me with their research into solving some of the mysteries of autism.
Dr. Martha Herbert of Harvard Medical School first caught my attention back in 2005 with her article, “Large Brains in Autism: The Challenge of Pervasive Abnormality.” Dr. Herbert was investigating the most replicated finding in autism neuroanatomy, namely that autistics seem to have unusually large brains. In her review of autism research, she noted that the picture which was emerging suggested inflammation as a reason for the large brains observed in autistic children.
Dr Herbert wrote, “Although there is a great deal of heterogeneity to the medical complaints that frequently accompany autism, there are common threads that may indicate common or related molecular and cellular mechanisms between body and brain. For instance, the pathophysiologies of inflammation and oxidative stress, and excitotoxicity are greatly linked, and it appears these types of mechanisms are implicated in the brain as well as some of the sensory and sleep regulation, epilepsy, immune, and gastro-intestinal complaints commonly seen in autism.”
To translate the medical-speak, inflammation is something we know from infections or injuries, oxidative stress is another expression for the signs of stress on the body from chemicals, and excitotoxicity is another word for how nerve cells responds to toxins.
Read the rest at Age of Autism.
11.22.2007
Gluten free stuffing ... just in time for Thanksgiving
You'll find this recipe for a basic, Thanksgiving gfcf stuffing at the GFCF Recipes site at Recipe Circus. I tried this the other day. Pretty good.
Garlic, Onion and Sage Stuffing
Source of Recipe: Angela Lowry
List of Ingredients
1/4 cup (1/2 stick) unsalted GFCF margarine (I just used canola oil in a pan)
2 small onions, finely chopped (I used 1 medium onion)
2 celery stalks, diced (I used 1 stalk)
5 garlic cloves, chopped (I used 3)
6 cups GFCF bread cubes (I used 1 recipe of Noah's Bread)
1 1/2 tablespoons rubbed or ground dried sage
3/4 teaspoon salt
1/2 teaspoon dried oregano, crumbled
1/2 teaspoon dried thyme, crumbled
1/2 teaspoon pepper
1/2 teaspoon Italian Seasoning (I skipped this and added a pinch of cayenne pepper)
2 eggs, beaten to blend (I used flax eggs)
1 cup chicken stock or canned broth (I used homemade)
Recipe
Melt margarine/oil in heavy large skillet over medium heat. Add
onions, celery and garlic and sauté until soft, about 8 minutes.
Combine bread, sage, salt, oregano, thyme, pepper and other spices in large bowl. Stir in onion mixture and eggs. Add stock and mix well.
Use to stuff goose, turkey, duck or chicken, or prepare as a side dish by baking in a casserole dish covered with oiled foil. I baked 20 mins at 350.
Happy Thanksgiving.
Garlic, Onion and Sage Stuffing
Source of Recipe: Angela Lowry
List of Ingredients
1/4 cup (1/2 stick) unsalted GFCF margarine (I just used canola oil in a pan)
2 small onions, finely chopped (I used 1 medium onion)
2 celery stalks, diced (I used 1 stalk)
5 garlic cloves, chopped (I used 3)
6 cups GFCF bread cubes (I used 1 recipe of Noah's Bread)
1 1/2 tablespoons rubbed or ground dried sage
3/4 teaspoon salt
1/2 teaspoon dried oregano, crumbled
1/2 teaspoon dried thyme, crumbled
1/2 teaspoon pepper
1/2 teaspoon Italian Seasoning (I skipped this and added a pinch of cayenne pepper)
2 eggs, beaten to blend (I used flax eggs)
1 cup chicken stock or canned broth (I used homemade)
Recipe
Melt margarine/oil in heavy large skillet over medium heat. Add
onions, celery and garlic and sauté until soft, about 8 minutes.
Combine bread, sage, salt, oregano, thyme, pepper and other spices in large bowl. Stir in onion mixture and eggs. Add stock and mix well.
Use to stuff goose, turkey, duck or chicken, or prepare as a side dish by baking in a casserole dish covered with oiled foil. I baked 20 mins at 350.
Happy Thanksgiving.
11.21.2007
Pumpkin spice cake
This is a great recipe to make for the kids -- or yourself -- for Thanksgiving. It's an easy gluten - casein - soy free recipe for a pumpkin bundt cake. I have to confess that I found this on the Web at a recipe site or maybe another blog, but I've forgotten which one. If this is yours, feel free to claim credit here. I've modified it slightly. It turned out great.
Ingredients
1 cup sorghum flour
1/4 cup tapioca flour
1/4 cup brown rice flour
2 tsp xanthan gum
1 tbsp baking powder
1 tsp baking soda
1 tbsp cinnamon
¼ tsp ginger
¼ tsp nutmeg
Dash of ground cloves
1 tbsp carob or cocoa powder
3 flax eggs
1¼ cups sugar
½ cup oil
1/2 tsp vanilla
1 cup canned pumpkin (Libby's is gluten free)
1 Tbsp powdered sugar (reserved for later to sprinkle over cooled cake)
Directions
In large bowl, combine flours, Xanthan Gum, baking powder, baking soda, cinnamon, ginger, nutmeg, clove, and carob/cocoa. Mix. Set aside.
Place flax eggs (1 tbsp ground flax seed mixed with 3 tbsp water - microwave 30 secs., let sit 5 mins), sugar and oil in mixing bowl and beat until blended. Add vanilla and pumpkin, mix another minute. Add mixed dry ingredients and mix until combined.
Pour batter into 10 cup capacity Bundt Pan which has been greased. I use Spectrum organic shortening. Sprinkle pan with sugar (approximately 1 tablespoon sugar). Bake in 350° oven for up to 40 minutes, checking after 30. Turn Bundt out onto serving tray and allow to cool. Once cool, sprinkle with powdered sugar, if desired. Domino sugar is gluten free. Or, try a Wholesome Sweeteners product.
Ingredients
1 cup sorghum flour
1/4 cup tapioca flour
1/4 cup brown rice flour
2 tsp xanthan gum
1 tbsp baking powder
1 tsp baking soda
1 tbsp cinnamon
¼ tsp ginger
¼ tsp nutmeg
Dash of ground cloves
1 tbsp carob or cocoa powder
3 flax eggs
1¼ cups sugar
½ cup oil
1/2 tsp vanilla
1 cup canned pumpkin (Libby's is gluten free)
1 Tbsp powdered sugar (reserved for later to sprinkle over cooled cake)
Directions
In large bowl, combine flours, Xanthan Gum, baking powder, baking soda, cinnamon, ginger, nutmeg, clove, and carob/cocoa. Mix. Set aside.
Place flax eggs (1 tbsp ground flax seed mixed with 3 tbsp water - microwave 30 secs., let sit 5 mins), sugar and oil in mixing bowl and beat until blended. Add vanilla and pumpkin, mix another minute. Add mixed dry ingredients and mix until combined.
Pour batter into 10 cup capacity Bundt Pan which has been greased. I use Spectrum organic shortening. Sprinkle pan with sugar (approximately 1 tablespoon sugar). Bake in 350° oven for up to 40 minutes, checking after 30. Turn Bundt out onto serving tray and allow to cool. Once cool, sprinkle with powdered sugar, if desired. Domino sugar is gluten free. Or, try a Wholesome Sweeteners product.
Forced vaccinations? What's going on in Maryland?
In case you haven't heard what's happening in Maryland, I'll repost a Christian Science Monitor Story (via CBS News) below. I don't know about you, but there's no way anyone's forcing me to give my kids vaccines. And I haven't read much about the autism families in Maryland and how they're dealing with this. So, read the article and try to imagine how much thimerosal was pumped into these kids' arms.
Maryland County Gets Tough On Vaccinations
Maryland County Gets Tough On Vaccinations
(Christian Science Monitor) This article was written by Gail Russell Chaddock.
For the parents that converged on a courthouse in Prince George's County, Md., on Saturday morning, the choice seemed clear: Vaccinate your kids or go to jail.
In fact, there are exemptions for medical or religious reasons in the state of Maryland. But few parents standing in lines that stretched down the sidewalk outside the county courthouse said they were aware of them.
Flanked by protesters and television crews, parents said they just wanted to sort out immunizations, so their kids could go back to school - and they could avoid penalties of up to 10 days in jail and $50 a day in fines.
"I've got too many children to raise to go to jail," says Remy Durham, who cares for her nephew, Lamonte Hyter, along with seven other children.
All states require that children be immunized from some childhood diseases, but the crackdown in Prince George's County has attracted international attention.
"We've had calls and e-mail from all over the country, especially the Midwest, as well as England, Germany, and Poland," says Glenn Ivey, state's attorney in Prince George's County, in a phone interview.
A lot of the uproar over the county's new approach to this issue was fueled by misinformation, he said - especially Web sites that said "we were going to start arresting people." One critic "called me a jackbooted representative of a United Nations, international pharmaceutical conspiracy," he says.
In fact, no decision has been made yet on what steps to take next, and it was never intended to scare people, he says. He's boiled his answer to critics down to one line: "It's about getting kids back in school, not to put parents in jail," he said.
For the parents that converged on a courthouse in Prince George's County, Md., on Saturday morning, the choice seemed clear: Vaccinate your kids or go to jail.
In fact, there are exemptions for medical or religious reasons in the state of Maryland. But few parents standing in lines that stretched down the sidewalk outside the county courthouse said they were aware of them.
Flanked by protesters and television crews, parents said they just wanted to sort out immunizations, so their kids could go back to school - and they could avoid penalties of up to 10 days in jail and $50 a day in fines.
"I've got too many children to raise to go to jail," says Remy Durham, who cares for her nephew, Lamonte Hyter, along with seven other children.
All states require that children be immunized from some childhood diseases, but the crackdown in Prince George's County has attracted international attention.
"We've had calls and e-mail from all over the country, especially the Midwest, as well as England, Germany, and Poland," says Glenn Ivey, state's attorney in Prince George's County, in a phone interview.
A lot of the uproar over the county's new approach to this issue was fueled by misinformation, he said - especially Web sites that said "we were going to start arresting people." One critic "called me a jackbooted representative of a United Nations, international pharmaceutical conspiracy," he says.
In fact, no decision has been made yet on what steps to take next, and it was never intended to scare people, he says. He's boiled his answer to critics down to one line: "It's about getting kids back in school, not to put parents in jail," he said.
By the start of the 2007 school year, more than 2,800 children in Prince George's County were not in compliance with state mandates on immunizations. The school board asked the courts to help by setting up a date for parents to either have their children vaccinated on site or provide evidence that they were in compliance with the law.
11.20.2007
A Thanksgiving experiment
We've never cooked a real Thanksgiving meal for our kids. Without gluten or casein or soy or rice or corn -- what was left? Well, this year, we're going to try a modified meal that, if all goes well, mirrors the adult's dinner. That way, if the kids want something that's on an adult's plate, we'll have something for them. They may never know it's different. And, who knows, maybe some of the adults will want what's on the kids plates. So, I am cooking tonight and tomorrow night. I will let you know how these work out and post -- both the successes and failures. Here's the main lineup:
- Roast chicken
- Sausage stuffing
- Mashed potatoes
- Pumpkin cake
- Carrots
And if we don't connect again until later, Happy Thanksgiving.
- Roast chicken
- Sausage stuffing
- Mashed potatoes
- Pumpkin cake
- Carrots
And if we don't connect again until later, Happy Thanksgiving.
11.18.2007
Pizza omelet - GFCF style
In the spirit of my last post, fried potatoes, and after realizing that likely didn't satisfy your hunger for a
really good new recipe, I felt obligated to offer something much better today. Thus, the pizza omelet recipe. Nothing difficult about this one. Of course, this does have eggs, the real ones. So, anyone with the dreaded egg allergy/intolerance, will avoid this recipe (like on our home). However, like in our home, even if the children can't enjoy, the adults sometimes sneak a little something for themselves. :)
Ingredients
---------------
2 medium potatoes, peeled and diced fine
1/4 medium onion, diced
sliced pepperoni (or, alternatively, bacon or sausage -- see below)
sea salt
4 eggs
oil - I use canola
Now, heat a little oil in a pan. I really only use enough to coat the bottom, if that. Once hot, toss in the potatoes. In 5 mins, add the onion. In another 5 mins, add the pepperoni.
When the pepperoni starts to look cooked through, crack the eggs over the potato mix. You can make these
scrambled, if desired, or keep the yolks intact. Let cook through on one side, then flip with a spatula. Season with sea salt, and if desired, pepper.
Now, this is good. It looks fun too. The pepperoni circles resemble a pizza and the yolks help that look also. Plus, it tastes great.
You can buy GFCF pepperoni at your local supermarket -- I believe Hormel makes a GF brand. Also, our local Giant Eagle started selling GF pepperoni (and it's marked with a real GF symbol now -- they finally realized there's a market for this stuff -- yeah!). Or, you can buy Wellshire Farms pizza pepperoni. If not, use an alternative, like Applegate Farms sausage, or Applegate Farms bacon. All healthy stuff -- and it tastes great. Also, remember, not all traditional breakfast foods have to be just for breakfast. This can be a good dinner too, especially if you're in need of more dinner ideas.

Ingredients
---------------
2 medium potatoes, peeled and diced fine
1/4 medium onion, diced
sliced pepperoni (or, alternatively, bacon or sausage -- see below)
sea salt
4 eggs
oil - I use canola
Now, heat a little oil in a pan. I really only use enough to coat the bottom, if that. Once hot, toss in the potatoes. In 5 mins, add the onion. In another 5 mins, add the pepperoni.
When the pepperoni starts to look cooked through, crack the eggs over the potato mix. You can make these

Now, this is good. It looks fun too. The pepperoni circles resemble a pizza and the yolks help that look also. Plus, it tastes great.

You can buy GFCF pepperoni at your local supermarket -- I believe Hormel makes a GF brand. Also, our local Giant Eagle started selling GF pepperoni (and it's marked with a real GF symbol now -- they finally realized there's a market for this stuff -- yeah!). Or, you can buy Wellshire Farms pizza pepperoni. If not, use an alternative, like Applegate Farms sausage, or Applegate Farms bacon. All healthy stuff -- and it tastes great. Also, remember, not all traditional breakfast foods have to be just for breakfast. This can be a good dinner too, especially if you're in need of more dinner ideas.
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